United States
Structure Tone Dublin Golf Classic 2023
in aid of “Steps with Roisin”
Structure Tone Dublin Golf Classic 2023
The 2023 Structure Tone Charity Golf Classic is taking place on Thursday 14th September in the K Club, Straffan, Co. Kildare, host to the 2006 Ryder Cup. Following on from the successful fundraisers for SDR procedures for Bobby, Sienna, Isabelle, Odie, Kate, Courtney, Sophie, Alex, Michael and Ella in previous years, we have decided to support another SDR candidate this year; Roisin O’Loughlin, Steps with Roisin.
With your help, Roisin will travel to St. Louis Children’s hospital, Missouri, USA to Dr Park, and undergo this life-changing surgery. This procedure is not available in Ireland, nor is it funded by the HSE, but is funded entirely through donations and fundraising. With the help of this surgery the aim for Roisin is that she will be able to walk and ambulate with reduced difficulty and ultimately pain-free.
We invite you and your company to join us as a sponsor for this event. By sponsoring this event you will be promoting your company to the many area professionals who will be participating and supporting Steps with Roisin.
Roisin’s Story
Roisin O Loughlin is our beautiful 7 year old daughter, she was born prematurely at 27 weeks weighing just 2 pounds 1 ounce. In the early weeks of her life she had to fight so hard to live we were so lucky to be able to bring our baby home from hospital to her two brothers.
Roisin was diagnosed with cystic PVL (periventricular leukomalacia) before leaving hospital. Roisin has cerebral palsy. She has been receiving a number of different therapies from an early age. She wears orthotics on her legs during the day. She uses a walker to help her get around and a wheelchair for longer distances.
Roisin is a happy, clever, sociable little girl who is very much loved by family and friends and always has a smile to share. She loves sport and doesn’t let her disability stop her from playing football with her friends on the local team or going horse riding on Saturdays. She is learning to swim and loves diving under the water. She is a brave girl who won’t let her disability prevent her trying something new.
Some days Roisin suffers with pains in her legs, her feet, her back and
her wrist. Some days cerebral palsy can get her down so much and she feels sad but she is a warrior and this will not stop her from living her life. She attends physiotherapy every week and does exercises and stretches at home every day. She has spasticity (tightness in muscles) in her legs and this is making it particularly hard for her to take steps.
We are delighted that Roisin has been accepted for SDR (Selective Dorsal Rhizotomy) surgery by Dr. Parks in St. Louis, Missouri in the United States – a specialist surgery that is not available in Ireland. This surgery has the potential to have a hugely positive impact on Roisin’s life- reducing her spasticity, improving posture, balance and her overall level of comfort.
Unfortunately this surgery and the follow up therapy are expensive and are beyond what we can afford ourselves. We would be so very grateful for any donation towards this surgery and the follow up care to help Roisin.
Thank You, from the bottom of our hearts,
Niall and Mags